For those people diagnosed with a rear disease, I encourage you to keep exploring options from the alternative health world. I have found that many alternative choices offer positive changes for a person with a "rare" disease.
Many rare diseases are the result of faulty gene expression. I have the rare disease Melorheostosis of Leri which is apparently caused from a "mininformed" gene expression. My particular rare disease causes a painful bone disorder for which western medicine has no successful treatments. I have been able to use methods from the alternative world to keep my disease process fully checked and am able to live a life free from pain.
I believe my experience in getting to a place of no pain is applicable to others with “rare diseases”.
The basic starting place to fix faulty gene expression appears to
be in fixing your body's environment -- that is your diet, sleep habits, alcohol and drug use, and exposure to harmful chemicals both in your diet and surroundings. There are man good books discussing diet and detoxification. I will recommend two –“Clean” by Alejandro Junger MD and "Stop Alzheimer's Now" by Bruce Fife ND and there are many more good ones available.
be in fixing your body's environment -- that is your diet, sleep habits, alcohol and drug use, and exposure to harmful chemicals both in your diet and surroundings. There are man good books discussing diet and detoxification. I will recommend two –“Clean” by Alejandro Junger MD and "Stop Alzheimer's Now" by Bruce Fife ND and there are many more good ones available.
If the rare disease you are suffering from was easy to cure, then
you would already know the answer. I think that most rare disease needs a multi-pronged approach to provide success. There are a lot of good healing modalities available. I believe that for long lasting progress, your lifestyle will require improvement—it is unlikely that modalities performed by a practitioner will be the sole variable for providing health.
you would already know the answer. I think that most rare disease needs a multi-pronged approach to provide success. There are a lot of good healing modalities available. I believe that for long lasting progress, your lifestyle will require improvement—it is unlikely that modalities performed by a practitioner will be the sole variable for providing health.
I suggest you locate practitioners of these modalities and give the alternatives a trial. Practitioners typically only provide one or two of these modalities so you will probably have to enlist several practitioners. I list some below that I know from personal experience provide good support for those with a rare disease.
- Acupuncture (look in your yellow pages),
- NES Health (www.neshealth.com for a local provider),
- Asyra (try internet searches with your area and the word Asyra combined in the search),
- Jin Shin Acutouch or similar practices,
- Specialists in Detoxification, (if one is not in your area, look for books that describe methods)
- Naturopath (contact the ANMA www.anma.org),
- Homeopath (contact the National Center for Homeopathy.org)
- Acupuncture (look in your yellow pages),
- NES Health (www.neshealth.com for a local provider),
- Asyra (try internet searches with your area and the word Asyra combined in the search),
- Jin Shin Acutouch or similar practices,
- Specialists in Detoxification, (if one is not in your area, look for books that describe methods)
- Naturopath (contact the ANMA www.anma.org),
- Homeopath (contact the National Center for Homeopathy.org)
Most of us need supplementation in this age where our foods are
grown in depleted soils or using genetically mocdified seeds or hybridized seeds with nutrition bred out and shipping hardiness bred in.
We have considerable anti –oxidant and detoxification burdens placed on
our bodies. Use of ‘whole food’ supplements can provide the enzymes needed to process the nutrients and so would be good to add to your routine. Consider a whole food multivitamin or the super-nutrient Bioage which is algae grown in a nutrient rich environment and proven in the farming community on farm animals to give outstanding support. Bioage was also used during the Chernobyl incident to help those with radiation sickness. Adding detoxification to your life is also important-see Dr. Sherry Roger’s book Detoxify or Die.
grown in depleted soils or using genetically mocdified seeds or hybridized seeds with nutrition bred out and shipping hardiness bred in.
We have considerable anti –oxidant and detoxification burdens placed on
our bodies. Use of ‘whole food’ supplements can provide the enzymes needed to process the nutrients and so would be good to add to your routine. Consider a whole food multivitamin or the super-nutrient Bioage which is algae grown in a nutrient rich environment and proven in the farming community on farm animals to give outstanding support. Bioage was also used during the Chernobyl incident to help those with radiation sickness. Adding detoxification to your life is also important-see Dr. Sherry Roger’s book Detoxify or Die.
Each rare disease needs some additions to the basic healing approach listed above. In other places on my website www.wellbodyfield.com I have listed approaches to both ALS, and Melorheostosis of Leri. Those of you diagnosed with a rare condition (or your loved ones on your behalf) should look at your disease process and consider supplements and healing methods that would provide support for your particular disease process. There are many reputable sites on the internet that may provide valuable insights and tips such as www.lef.org.
An approach that I have only read about is to hire a medical researcher to investigate research being done for a particular rare disease. These people investigate options from medical journals and other sites to determine possible approaches. I tried an internet search of “medical researcher for hire” and found several sites that will do this. If you can not research your disease on your own, then this may be a good option for you. Then work with your health care provider in implementing the information.
My life has changed after contracting my rare disease. I now am aware of what I put in my body. I am aware of the changes to our foods and to our total environment and how those changes are impacting every
one of us. I needed to study the body and alternative healing in depth to get to where I needed to go. Most people would not need to become a Naturopath to find the healing they need. However, to find your healing, you are likely to be engaged in a learning journey. The odds of your healing go up the more you understand your relationship with the world around you and how your body works. The odds improve
significantly with your willingness to apply what you learn.
one of us. I needed to study the body and alternative healing in depth to get to where I needed to go. Most people would not need to become a Naturopath to find the healing they need. However, to find your healing, you are likely to be engaged in a learning journey. The odds of your healing go up the more you understand your relationship with the world around you and how your body works. The odds improve
significantly with your willingness to apply what you learn.
With my new emphasis on diet, supplementation, use of NES Health
and Asyra I am now in better shape (based on blood tests) than I was 20 years ago. By treating my “rare disease” I think I have prevented contracting common diseases like diabetes and prevented viruses like the common cold and flu from gaining a foothold on many occasions
(and on the occasions that I do contract them, I get over the symptoms
quickly). While I can not say I am grateful for having my “rare disease”, it has helped me become more accomplished, sympathetic, and knowledgeable than I could ever have anticipated.
and Asyra I am now in better shape (based on blood tests) than I was 20 years ago. By treating my “rare disease” I think I have prevented contracting common diseases like diabetes and prevented viruses like the common cold and flu from gaining a foothold on many occasions
(and on the occasions that I do contract them, I get over the symptoms
quickly). While I can not say I am grateful for having my “rare disease”, it has helped me become more accomplished, sympathetic, and knowledgeable than I could ever have anticipated.
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